Tag Archives: Special Needs Children

Cool Tips for Hot Days and Heat Stress

Anara Midgett has some fantastic ideas that she shares when it comes to keeping cool during these summer heat waves.

For those in Pennsylvania, the week of the Fourth of July may feel like the state was temporarily transported to the middle of the Sahara, but hopefully with some air conditioning to combat the heat. Preventing heat stress is especially important during this time of the year, and children are especially prone to so much heat. Although turning off the lights and hiding under a fan may seem like the best idea, there are some other options out there.

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Couple Builds House Designed Around Children’s Special Needs

Couple builds house designed around children’s special needs – Columbia Daily Tribune | Columbia Missouri: Pulse.

The Cibula family has spent ten years worth of planning and building in order to create a new home designed to make the lives of their children easier. Their two sons, Joshua and David, will now be able to grow up in a home that helps give them some sense of independence. Their eldest, Joshua, was born with cerebral palsy, as well as intellectual disabilities and other physical issues that limited his mobility. Following the birth of their second son, David, who was also born disabled, the couple realized they needed a new home. A special kind of home.

What Jennifer and Andy Cibula didn’t want was the kind of home that looked like they were raising their children in an institution. Finally, after going through many architects who couldn’t quite grasp their dream, the couple ofund Bob Wilkoff of Archaeon Architects. Together they created a one of a kind home that will adapt to the children’s needs as they grow older.


Book #20 in our 30 Days-30 Books

Why do kids do act the way they do when they have sensory dysfunction?

Recommended by both parents and teachers, The Out-of-Sync Child clearly lays out the senses, their function, and examples that show what normal SI and sensory dysfunction actually look like. Carol Stock Kranowitz explains and gives examples as to why some kids many seem aggressive, or why some might act out in class, and anyone who is around individuals with disabilities will benefit from the knowledge found within this pages.

An indispensable guide, The Out-of-Sync Child partners well with The Out of Sync Child has Fun, with each presenting interesting case studies and activities for any child with sensory integration issues.

Book #14 in our 30 Days-30 Books

Did you love the last Chicken Soup for the Soul, #9 on our 30 days-30 special needs books list? Well, luckily for you, book #14 is another classic Chicken Soup for the Soul. 101 Inspiration Stories for Parents of Children with 

Autism and Asperger’s, like other Chicken Soup for the Soul stories, these will provide comfort, encouragement, and hope for parents of children with Autism and Asperger’s. Some stories might bring back old memories, and others might remind you of the serious times, or the fun times or raising a child with special needs. These stories are about the real struggles that families with special needs individuals face, and it comes highly recommended


Book #12 in our 30 Days-30 Special Needs Books

Have you ever wondered what it’s like for a brother or sister of someone with special needs? They might not be the first person who comes to mind, but in book #12 of our 30 days-30 special needs books, we follow one character who gives you a look at her life.

For 12-year-old Catherine, her family’s life primarily revolves around her brother’s disability. She hopes for new friends, and for her brother David, who has autism, she wants to teach him the rules like “to keep his pants on while in public.” While she cares for her brother, she is also embarrassed by his behavior. As Catherine makes new friends with Jason, a nonverbal paraplegic, and Kristi, her new next door neighbor, she learns a few new things as well. She realizes that sometimes there is no such thing as normal.

Humorous and heartwarming, this book is perfect for you or any young child you know who experiences a life just like Catherine’s.

Book #11 in our 30 Days-30 Books

Looking for some inspiration or maybe just struggling? Filled with commonsense advice, and a seemingly endless guide, you might just find just what you need in our 11th book, on our list of 30  days-30 books.

Ellen Notbohm, who also wrote Ten Things Every Child With Autism Wishes You Knew, teams up with Veronica Zysk to take the words “No, I can’t” out of your vocabulary. They have 1001 great ideas to help you find a new way to help teach and raise children with Autism or Asperger’s, and to help change that no, to “Yes, I can”. This book is a treasure trove of ideas waiting to be used, so why not try some out? You won’t be running out of ideas any time soon.

Book #10 in our 30 Days-30 Books

Book #10 in our 30 Days-30 Books list might be something that your pent up frustration can relate to.

With so many parents preoccupied with their ‘perfect’ kids, there are few who actually speak up about the frustrating and difficult times they go through. While not experts on parenting children with disabilities, sisters Gina and Patty are speaking up about their experience as parents of children with disabilities. They provide some wonderful, and hilarious, advice on things that might just help you:

• Find a support group—either online or in your community
• Ensure that your child gets the right in-school support
• Deal with people—be they friends, family members, or strangers—who say or do insensitive things to you or your child
• Find fun, safe, and inclusive extracurricular activities for your child
• Battle your own grief and seek professional help if you need it
• Keep the rest of the family intact in moments of crisis

For more information, click on the book above!

My Bike Program Sponsored by Variety the Children’s Charity Pittsburgh

Do you remember your first bike? The feeling of the wind blowing in your hair, the sun’s warmth on your face? There is a sense of freedom when riding a bike especially for children. Not everyone is able to ride a traditional bike though, like children with special needs. Everyone deserves to experience the independence, mobility, and health benefits that bike riding provides. Adaptive bikes are expensive and are cost prohibitive for many families.

In November 2012, Pennsylvania Governor Tom Corbett and Allegheny County Executive Rich Fitzgerald announced a new program intended to provide bicycles to those in need. Corbett teamed up with Variety: the Children’s Charity of Pittsburgh on the program called “My Bike.” It began giving adaptive bikes a decade ago, under its Kids on the Go mobility program but they started “My Bike” to increase access. Corbett said the program will provide adaptive bicycles to children with disabilities in the 10-county greater Pittsburgh area to increase their mobility and encourage play. These counties include Allegheny, Armstrong, Beaver, Butler, Fayette, Greene, Indiana, Lawrence, Washington, and Westmoreland.

Variety’s mission:

“Variety the Children’s Charity provides children with disabilities unique programs,experiences, and equipment, so they may live life to the fullest. Variety works to ensure that children with disabilities can participate in the same activities as any other children by providing mobility equipment and social programs to children, ages 21 and under, in ten counties in Southwestern Pennsylvania.”

Variety’s “My Bike” program provides adaptive bikes to children with disabilities who meet the eligibility guidelines. For more information and for an application, visit Variety: The Children’s Charity of Pittsburgh’s website, http://www.varietypittsburgh.org/MyBikeProgram.asp

The cost to sponsor a bike is $1,800 and can be sponsored by individuals and organizations.

My Bike

Image Source: Variety The Children’s Charity Pittsburgh